Hello all! I'm back from yet another blogging vacation, but I couldn't resist but get on to post about two great causes that I am actively trying to raise money for right now.
I'm sure if you've been around me at all since the twins have been born you have heard me talk about the "multiples board". I don't know what I would have done without these women (none of whom I have met in real life) during my pregnancy and these first 10.5 months with the boys. I didn't know anyone that had twins that I could talk to, so these women have been my lifesavers! They are just like true friends too! If I can't get on the bump for a couple weeks because I'm too busy with work, the house, etc. I can pop on any time for support and answers and they always come through for me...just like a true friend does.
Brook is on the forum and gave birth to twin girls, Sydney & Carynne, in August. They have both just been diagnosed with Werdnig-Hoffman Disease. It is a rare genetic disease that is untreatable. They have the most severe form. Their lungs are going to slowly give out because the muscles will not be able to help them breath anymore. They are both on feeding tubes, oxygen at night and monitors. They will never be able to sit up or hold their heads up because their muscles just can't take it. They might never talk because they have to choose between using their energy to breath or to do other things and they instinctively know to breath.
It breaks your heart to think of any parent losing a child. It's unthinkable to imagine parents told that both of their children have a terminal disease. She has been told they will be lucky to live past the age of 2. Here's the story and more information about their diagnosis. Click here for a recent update with some pictures.
Our group is raising money for Brook and her family so that it can help with medical expenses and to pay for a professional photographer to take some beautiful pictures of her daughters. If you'd like to make a donation, you can do so by clicking the graphic on the right side of my blog. Thanks so much and please keep Carynne and Sydney in your prayers.
As most of you know I am also trying to raise money for our breast cancer awareness game on February 18th - Pink Zone. In addition to all the work Coach Vivian has done through donations and silent auctions, I am trying to seperately raise $2500 by Saturday, February 7th. If we reach that goal, I will allow my team to shave my head at the conclusion of our game at halftime. We still have $300 to go. Check out more information here.
So again, if you can spare a few dollars for two great causes please do. Every little bit helps...$10 is just going a week without your daily coffee and you can help those who are less fortunate. Please keep Carynne and Sydney and their family in your thoughts and prayers!
she's growing up so fast
3 weeks ago